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Another question about sleep apnea

Just to see what anyone thinks on the same topic.  I had the sleep apnea test a couple of months ago because I was not sleeping much at night and was yawning all day long, luckily in front of  clients making that just great.  They came back with me not having sleep apnea.  I was told I had to have a narcolepsy test as a follow up. Is that normal?  I switched firms that I was working with and no longer have a 1 hr drive each way, so I am sleeping at night.  I just don't want to get up in the morning and still yawn most of the day.  Any of the ENTs run into that?  Just to kick it up a notch, I am gaining weight for no reason even given a strictly monitored diet and following the traiing program.  I am using the Lose It app and everything, but actually steadily gaining weight.  I did not know if the two were connected.  The sleep thing has been going on for years by the way.

Comments

  • Ned, I think we need a specialist to weigh in here. Improved sleep = less daily fatigue now? Or are you eating more to try and stay awake? You got a lot going on...sitting back here to listen in.

    P
  • It is actually more sleep = increased fatigue.  I drag myself out of bed in the AM and by 10, could really use a nap.  Once I get home, I could really use another one. I am seeing a specialist for thyroid now and have been since last Spetember.  I am taking 20 mcg of levoxo something and then 5 mcg of cytomel in the AM and then again in the PM (2 ish).  I was told that I would feel an energy surge after that, but instead, I am even more fatigued.

    As far as eating more to stay awake, I am not doing that.  I am at about a net of 2100 calories each day.  now, my season is in the can because of recovery from compartment syndrome taking a really long time, so I am not doing the full workouts that are on the plan, just because there is no race to do this year.  If I look at my log, I am burning usually 800 to 1200 calories during the workweek workouts, moreso on the longer weekend workouts.  With that, my weight has either stayed the same or increased over the past few weeks.  I have switched to a much higher protein diet, 40% to 50% of intake and a ton of fruits and veggies.  I don't eat sweets except for maybe once a week and that is seriously 2 tablespoons of nutella. I eat about 6 meals a day that are fairly evenly spaced out and usually do not eat after 8:30.  I did have food allergy tests and they were negative.  I only had a dustmite allergy.  Who doesn't?  The one thing that I have been able to figure out is that I am super sensitive to sodium, so I watch that like a hawk.  I can retain water like no one's business and it lasts for days.

    It is incredibly frustrating becasue everyone seems to be just totally in the dark as to what is going on, that is why I thought I owuld start here.  I have not been this heavy in a really, really long time.  Aside form going superfast downhill, there is no benefit to where I am right now.  The only positive thing is that I have my average speed close to where it was last year and 27 pouds ago.  If I can drop those pounds and at least get back to where I was, then I should be a ton faster.  Any guesses would be incredibly welcome.  The endo I am seeing is pretty open to trying new things.

  • Don't know of this will help, but it's worth a look

    http://doctorstevenpark.com/uarsthehiddensleepcondition

    I suffer from this, and find that sleeping with a sleep right bite guard and a breathe right nasal strip make a huge difference.

    Mike
  • Ned: When was the last time you had a full workup by an endocrinologist? If possible, I'd find one who works with athletes. Most work with overweight/obese inactive people and have no clue how to handle athletes. I think there is A LOT more going on here than it seems.



    Here's another thought: do you live alone? Could you be eating in your sleep? I know it sounds freaky, but it is a known eating disorder. My mother-in-law suffered from it. If you live with someone, maybe they can tell you if you are up/down during the night.

  • I actually have been seeing one since last September.  I have had a huge change in the thyroid meds that I take over the past year.  They do work with athletes, but I guess that I am just not being patient.  It has beena  year though.  I am supposed to get my blood tests this week because I had emailed her to tell her that there is no way that the cytomel I am taking should be putting me to sleep after I take it.  I don't live alone and have two kids.  If I was eating in my sleep, which I actually brought up to the doctor, I probably would have died a while ago as I have two girls who have Barbie stuff all over the house and you totall yhave ot be awake to get down the stairs and not slip on a car or a Polly Pocket toy.  There are no traces of anything like that though.  In your experience, is there anything I can ask to bring it up to the doctor as far as other issues to consider?  I am just exhausted throughout the day.  Maintaining my workout schedule, and it is not as intense as it should be, has become very difficult.  I sometimes feel like I am using Ironman willpower at mile 22 of the run just to get up in the morning and do something.  I am also having a hard time even getting past 8 miles of running and I almost always walk at soem point.  It has been years since I walked during a training run.  I appreciate your help and anyone's input.

  • You might also talk to him about adrenal function. There is a lot of dispute in the medical community about "adrenal fatigue." I know one EN'er treated it and is now better. But, it takes a while.

    Unfortunately, once you get into the endocrine system, it is very complex. Messing with one thing can cause problems with others.

    As far as the night eating, I think that you can be very awake so navigating all the toys shouldn't be an issue. Does your spouse wake up when you wake up? I'd be tempted to put something into place to wake her if/when you wake at night.

    I'll keep thinking and looking for more ideas.
  •  Ned- I am part of hypothyroid club

    Last december started on cytomel, I am on the cytomel /synthroid combo. Would inquire about adrenal, I am going to ask my doc. 

    Are you taking the thyroid meds on empty stomach? no other meds/vitamins. It has taken until just recently after dosage change in december/january for things to kick in. I still get tired easily, but better. Weight now is finally getting better, but is slow. my Dr recommends getting levels checked with changes in weight- 20 lbs in either direction.

     last year before i knew my t3 was low, no energy, sleep was poor quality, no motivation to train. May need to get levels checked more frequently

    A good resource- The Thyroid solution by Dr. Ridha Arem

  • I do get them checked every 1 1/2 to 2 months. I am currently waiting fo rhte doc's office ot send a new lab slip so I can ge tthe bloodwork done tomorrow morning.  I type this in a total state of half sleep and it is 9:45 AM.  I hate to take pills, but are there any vitamins that are not just sugar pills that can help with a little pep? 

     

    When you started to take the cytomel, did you have big weight swings?  It seems that I can gain and lose up to 6  to 8 lbs in 2 days.  This morning, I was 5 lbs heavier than yesterday.  I did have 1 freezie pop at the pool yesterday, but I don't think that was the cause.  Did you feel any immediate jolt from the cytomel?  My doc seems to feel that I should be feeling something fairly quickly and I take them both on an empty stomach, one at 5:30 AM with my generic synthroid and then again at 1, before lunch.

  • Are you taking a good multi and maybe a b complex?
  • I am using the GNC multi in the sport version with 600 of calcium and 2000 of fish oil each day.

  • I found out that I actually do have narcolepsy, which I laughed at when the doc told me.  He did not see it as funny. They are just treating it with some legal upper (nuvigil) and then another drug (topomax) to take care of the migranes that this drug causes.  The good news is that I feel like a 12 year old with serious ADHD during the day and then crash all night.  I was also really depleted in vitamin D and have to take a prescription for that for 4 weeks to get it back and straight.  I was telling my chiro that the other day and he said something about adrenal fatigue.  Has anyone had any experience with that?  I did a stress cortisol test that showed no real issue, but what I have read looks like a different saliva test from the one I did. 

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